by Kayla Myers, Family Peer Supporter
March 30, 2023
When I was first asked to write a blog geared to the topic “Beyond Recovery”, I tried to really think about how I could incorporate a memory that had just shown on Facebook that morning. This was the first public statement I had made about my son’s and my story regarding his struggles. Here is the post I am referring to:
“As a mother, you never really know what you are going to get. I mean you have an idea, but then that idea turns into the real deal. To figuring out a groove for your household, to waking up in the middle of the night to console your baby, and then moving on to their toddler years (boy those are a treat). Your children start to grow and mold into the people they will become. Some personalities can be outgoing, some reserved, or some a little of both. And the funny thing is as their parents, we love our children equally but love them individually for who they are. Just when you have difficulty parenthood throws at you and you have it figured out, surprise, here comes another! So, you roll with the punches and figure it out the best you know how.
My youngest has always been the sweetest soul. But then at the same time he has worried me more times than I can count. From his excessive ear infections, to being hospitalized for bronchiolitis, and now to being a two-and-a-half-year-old who’s vocabulary is that of a one-year-old. He is in speech, OT, and play therapy. He could have a form of apraxia, he has sensory issues, or he could be on the spectrum. Knowing your child is smart, and happy, but doesn’t want to engage in communication through words is heartbreaking. As a mother, you just want life to be easy for your child. For the world to be kind to them while they figure it all out. As his mom, I will do anything for him to grow and learn. So that is my promise to you baby boy. I will fight for you, I will speak for you until you can, and I will never stop loving you for being “different” or for needing more time than the kids your age.
This is a super vulnerable post. So, I ask, be kind with your words. We are doing everything we possibly can for our boy. Please keep him in your thoughts and prayers.”
When I read this post from five years ago and reflect, it makes me emotional and I wish I could give myself a big hug. I had love and understanding from friends and family, but no real support on “how and what” to do next. Bryce and I are far from any finish line on his journey, but I know we are beyond recovering from the fear of the unknown, helplessness, and the deep-rooted biased society has placed on those who are neurodiverse. I know now how hard he’s worked and how far we have come on this journey together. I have so many more answers and tools under my belt to best advocate for him and how to meet him where he is. All in all, “Beyond Recovery” means that I get to show Bryce everyday my love for him is not conditional but rather unconditional, he has advocates who will do what’s best for him, and he can authentically himself. Now we can use our story to help support other parents to be the best advocates for their children.